Weird news - Pakistani children paralyzed at night

Whenever we think that we have learned a lot about our body and what could be impacting it, we come up with something new that tells us that there is a lot to learn about maladies and the functioning of the human body. So, for example, we have learnt how to dramatically extend the life duration for somebody afflicted with AIDS or with many different types of cancers.
What happens when somebody gets afflicted with a malady for which doctors are not able to provide any help. Family members are clueless about what to do, and depending on the society they are based in, they may try to get faith help or help from outside the medical system. This happened to a couple of boys in Pakistan, who were getting called 'solar' kids because they were active during the day but went into a sort of paralytic state when the sun went down (link to article):

The ‘solar kids’ who are being treated for an illness which leaves them paralysed by sunset each day might be suffering from a neuro transmitter deficiency, said vice chancellor of the Pakistan Institute of Medical Sciences (Pims) Dr Javed Akram, who also chaired a meeting of a medical board called to discuss the children’s case. “In simple words, neuro transmitters in the brain have been disturbed. A similar case was reported in Japan and was named JPA, but that disease occurs in both male and female children. However, our experiences in Pakistan indicate that this case only occurs in male children and we are considering giving the disease a new name,” he added.